Tuesday, November 30, 2010

Torticollis




**if you scroll through my pictures, you will notice that he is always leaning his head to the same side****

Ever since Kayden has been old enough to start holding his head up, we have noticed that he leans his head to one side. I thought that this was because he was only 2ish months old and that they just didn't have strong enough head muscles yet. However, as he got better at holding his head up I noticed he still did it. Many people commented on it but I still just thought it was because his muscles weren't strong enough yet. We were starting to notice though that the left side of his face was fuller than the right side, along with the neck muscles. It was obvious that his left neck muscles were much more fuller than the right. My mom was showing pictures of Kayden to her boss today though and her boss asked my mom if Kayden had torticollis. Her grandson had it and he would constantly lean his head to one direction. My mom called me and told me so I decided I should go ahead and call the pediatrician instead of waiting for his 4 month appointment to bring it up. The more I read about it, the more obvious it was to me that he had it. We took him to the pediatrician where she confirmed that he did in fact have torticollis. The receptionist has called the physical therapy place to see if they take our insurance but had to leave a message, but either way we will start physical therapy soon in hopes of correcting it.

Some information on torticollis:
What is torticollis?

Torticollis means "twisted neck," and if a child has this condition, her head will be tilted to one side while the chin is turned to the other side. It's also sometimes called wryneck. While it may look painful, it usually isn't.
When a baby is born with the condition, it's called congenital torticollis. (There's also a condition called acquired torticollis that can develop at a later time. In some cases of acquired torticollis, the chin may be turned to the same side as the head.)
About 1 in 250 infants are born with torticollis. (Ten to 20 percent of babies with torticollis also have hip dysplasia, in which the hip joint is malformed.)

What causes congenital torticollis?

Congenital torticollis is most often due to tightness in the muscle that connects the breastbone and the collarbone to the skull. (It's called the sternocleidomastoid muscle). This is called congenital muscular torticollis. This tightness might have developed because of the way your baby was positioned in the uterus (with the head tilted to one side) or because the muscles were damaged during delivery.

Why does this happen?
Usually it's how the baby might be positioned in the womb or through some kind of trauma during delivery. This trauma or injury causes a shortening or contracture of the sternocleidomastoid muscle. If you notice the baby's head tilting to one side and they have trouble tilting or turning to the other take them to the doctor right away. Torticollis is easily corrected when found early.

Is it serious? Find out fast
Much less commonly, congenital torticollis is caused by abnormalities in the bones of the neck (the cervical vertebrae). The bones may be abnormally formed, stuck together (fused), or a combination of both. This condition is known as Klippel-Feil syndrome.
It's important to know whether Klippel-Feil is what's causing a baby's neck problem because many babies with this syndrome have other problems, especially with hearing and the kidneys. Also, the stretching exercises recommended for muscular torticollis are not only ineffective but potentially dangerous for a child with Klippel-Feil syndrome.
In rare cases, congenital torticollis may be inherited. Or it may be the result of a more serious underlying condition, such as a brain or spinal cord tumor that damages the nervous system or muscles.

How will I know if my baby has torticollis?

You'll probably notice that your baby holds her head to one side and has limited neck movement. Another telltale sign is a small bump on the side of her neck.
Congenital muscular torticollis is usually diagnosed within the first two months of a baby's life. Even if parents don't spot it, a pediatrician will.
Babies with torticollis may also develop positional plagiocephaly (asymmetrical head shape) because they'll often sleep with their head turned to the side.
In addition to a physical exam, the doctor may need to order X-rays of the neck to determine which form of torticollis your child has. The doctor may also order other tests, such as an ultrasound of the hips or kidneys, depending on the type of torticollis.

How is it treated?

Your child's doctor may refer you to a physical therapist or an orthopedic surgeon (bone and joint doctor).
Congenital muscular torticollis is typically treated with stretching and positioning. You'll need to perform these exercises on your baby several times a day. The moves aren't complicated, but make sure you understand them and are comfortable doing them before you leave the doctor's or physical therapist's office.
If your baby has muscular torticollis, you'll want to provide as many opportunities as possible for her to turn her head to the side that she normally doesn't turn to. If she has trouble turning her head to the right, for example, you could lay her on the changing table so you're standing at her right side. And position her in the crib so she has to look to her right to see anyone approaching her.
It's also important to give your baby plenty of time on her tummy when she's awake, to help develop the muscles in her neck.

How long does it take to see results?

As long as your baby's muscular torticollis is discovered early enough – ideally by the age of 2 or 3 months – and you're following the prescribed stretching program, you'll probably see improvement within weeks. The condition should be fully corrected by age 1.
If, however, the muscles don't return to their normal length and your baby doesn't have a normal range of motion by the time she's 18 months old, your doctor may refer you to an orthopedic surgeon, who may recommend surgery to lengthen the muscles. Surgery is performed in about 15 percent of cases.
Information from http://www.babycenter.com/0_torticollis_10912.bc?page=2

It was hard to hear that my baby has something wrong with him, but I am thankful that it is not more serious. He is a happy baby so I am thankful that this does not affect his mood or disposition, and he isn't in pain. We just need to get it corrected so that he does not have problems in the future.

5 comments:

  1. I saw Sarah's post about Kayden, and just wanted to say that I'll definitely be praying for you guys. I'm that must have been frightening at first. Any mother hates to think that something might be wrong with her child. It is good that you are able to get him into physical therapy right away. I hope that he'll improve quickly.

    ReplyDelete
  2. My daughter has torticollis. she is 4 months and it's not getting any better and i've been doing stretches for 3 months and she has seen a craniosacral therapist 8 times. I would love to chat with you about this. Is there any way you could email me? holly.della@mac.com

    I'm really desperate to find someone who has gone through this.

    ReplyDelete
  3. You know its kind of funny my son was born august 20 2010 and his head turns the same way. he was just diagnosed with torticollis a month ago and just went and got fitted for his helmet yesterday. Starts therapy next week. Mine is happy all the time and it has never caused him any discomfort. Its amazing how many people are going through what i am going through. I just wanted my baby perfect i think we all do. But you are right and this can be corrected. If you would like to chat sometime my email is afosterswife@aol.com

    ReplyDelete
  4. how is your son doing today? just found your post... our little boy is 15mths old and has had torticollis since birth. we thought it had corrected itself but when he got sick last week now it seems like it's returned. we live overseas and it's hard to find the help we need. i'm worried he's going to have it for life or need surgery... do you have any advice? my email is bacon_poland [at] hotmail.com

    ReplyDelete
  5. He's great! We did physical therapy from the time he was 2 months until he was about 10 months. We had to do a lot of stretches which i believe you can find on the internet- just search torticolis stretches. You would never know that he has it now. In everything I have read about it, it is better to get it corrected earlier rather than later. I would atleast try to search and do some stretches with him to see if that will help.

    ReplyDelete